McCarron, M. and Lombard-Vance, Richard and Murphy, Esther and May, Peter and Webb, Naoise and Sheaf, Greg and McCallion, Philip and Stancliffe, Roger and Normand, Charles and Smith, Valerie and O'Donovan, Mary-Ann
(2019)
Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review.
BMJ Open, 9.
ISSN 2044-6055
Abstract
Objective: To review systematically the evidence on how
deinstitutionalisation affects quality of life (QoL) for adults with
intellectual disabilities.
Design: Systematic review.
Population: Adults (aged 18 years and over) with
intellectual disabilities.
Interventions: A move from residential to community
setting.
Primary and secondary outcome measures: Studies
were eligible if evaluating effect on QoL or life quality, as
defined by study authors.
Search: We searched MEDLINE, PsycINFO, CENTRAL,
CINAHL, EconLit, Embase and Scopus to September 2017
and supplemented this with grey literature searches. We
assessed study quality using the Critical Appraisal Skills
Programme suite of tools, excluding those judged to be of poor
methodological quality.
Results: Thirteen studies were included; eight quantitative
studies, two qualitative, two mixed methods studies and
one case study. There was substantial agreement across
quantitative and qualitative studies that a move to community
living was associated with improved QoL. QoL for people
with any level of intellectual disabilities who move from any
type of institutional setting to any type of community setting
was increased at up to 1year postmove (standardised mean
difference [SMD] 2.03; 95%CI [1.21 to 2.85], five studies, 246
participants) and beyond 1year postmove (SMD 2.34. 95%CI
[0.49 to 4.20], three studies, 160 participants), with total
QoL change scores higher at 24 months comparative to 12
months, regardless of QoL measure used.
Conclusion: Our systematic review demonstrated a
consistent pattern that moving to the community was
associated with improved QoL compared with the institution. It
is recommended that gaps in the evidence base, for example,
with regard to growing populations of older people with
intellectual disability and complex needs are addressed.
| Item Type: |
Article
|
| Additional Information: |
This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
Cite as: McCarron M, Lombard-Vance R, Murphy E, et alEffect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic reviewBMJ Open 2019;9:e025735. doi: 10.1136/bmjopen-2018-025735
Funding: The study was funded by the Department of Health (Ireland), with
commissioning assistance by the Health Research Board (Ireland). |
| Keywords: |
Effect; deinstitutionalisation; quality
of life; adults with intellectual
disabilities; systematic review; |
| Academic Unit: |
Faculty of Science and Engineering > Psychology |
| Item ID: |
13658 |
| Identification Number: |
https://doi.org/10.1136/bmjopen-2018-025735 |
| Depositing User: |
Richard Lombard-Vance
|
| Date Deposited: |
24 Nov 2020 17:24 |
| Journal or Publication Title: |
BMJ Open |
| Publisher: |
BMJ Publishing Group |
| Refereed: |
Yes |
| Funders: |
Department of Health (Ireland), Health Research Board (HRB) |
| URI: |
|
| Use Licence: |
This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available
here |
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