Maguire, Rebecca and Maguire, Phil (2020) Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions. Current Neurology and Neuroscience Reports, 20 (7). ISSN 1528-4042

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Abstract

Purpose of Review In spite of recent advances in treatment, many people with multiple sclerosis (MS) require ongoing care and support. Informal caregivers can experience burden as a result of their role, with possible implications for quality of life (QOL). We review recent research examining MS caregiver experience to (1) understand current risk factors for caregiver burden and (2) identify possible strategies for increasing carer well-being. Recent Findings MS caregiver experience is highly variable and can be predicted by a variety of care recipient, caregiver and contextual factors. Burden is not the only characteristic associated with care, with positive consequences also reported. Emerging research suggests a number of ways in which carers can be better supported. Summary Identifying and meeting the needs of MS caregivers offers the best way of delivering tailored support. Future research should focus on the development of psychosocial supports, while acknowledging the needs of those caring for different MS patient populations.

Item Type:	Article
Keywords:	Multiple sclerosis; Caregivers; Informal carers; Burden; Social support; Psychological adjustment;
Academic Unit:	Faculty of Science and Engineering > Computer Science
Item ID:	16242
Identification Number:	https://doi.org/10.1007/s11910-020-01043-5
Depositing User:	Phil Maguire
Date Deposited:	06 Jul 2022 08:11
Journal or Publication Title:	Current Neurology and Neuroscience Reports
Refereed:	Yes
URI:	Publisher
Use Licence:	This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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