Casey, Hannah and Trayer, Áine and Desmond, Deirdre and Coffey, Laura (2023) Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers. Journal of Intellectual Disabilities. ISSN 1744-6295

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Abstract

Background: Decisional support is important to people with intellectual disabilities. This review explores: i) how everyday decision-making is perceived and/or experienced by adults with intellectual disability, their care partners and direct care support workers (DCSWs); ii) techniques/approaches used to support everyday decision-making; and iii) barriers/facilitators encountered. Method: PRISMA systematic review methodology using PsycInfo, PubMED, Web of Science, CINAHL and Scopus. Results: Eighty-one papers were included [qualitative (n = 69), quantitative (n = 7), mixed methods (n = 5)]. Adults with intellectual disability reported wanting to make decisions and needing support. Care partner support was affected by concerns about safety and decisional capacity. DCSWs reported difficulty balancing client decisions and care partner concerns when providing support. Supported Decision-Making (SDM) was identified as a key method of support. Barriers and facilitators were interconnected and impacted by stressors. Conclusion: This topic is under-researched and ill-defined. Supported decision-making is an increasingly popular approach whose application requires further exploration.

Item Type:	Article
Keywords:	everyday decisions; intellectual disability; supported decision-making; self-determination; autonomy; systematic review;
Academic Unit:	Faculty of Science and Engineering > Psychology
Item ID:	18621
Identification Number:	https://doi.org/10.1177/17446295231189020
Depositing User:	Dr. Deirdre Desmond
Date Deposited:	07 Jun 2024 11:39
Journal or Publication Title:	Journal of Intellectual Disabilities
Publisher:	Sage
Refereed:	Yes
URI:	Publisher
Use Licence:	This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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