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Dove, Edward (2024) The European Health Data Space as a Case Study. Ethics and Human Research, 46 (6). pp. 29-35. ISSN 2578-2363
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Abstract
In May 2022, the European Commission proposed the launch of a health-specific data sharing framework called the European Health Data Space (EHDS), underpinned by legislation, for the use of electronic health data by patients and for research, innovation, policy-making, patient safety, statistics, or regulatory purposes. In this essay, I review some of its more contentious features based on the latest version of the legislative proposal. I suggest that the EHDS is a useful case study to illustrate the need for a translational bioethics approach that shines a critical analytical light on contentious aspects of large-scale research infrastructures.
| Item Type: | Article |
|---|---|
| Keywords: | electronic health data; health data sharing; health equity; translational bioethics; translational research ethics; translational science; |
| Academic Unit: | Faculty of Social Sciences > Law |
| Item ID: | 19830 |
| Identification Number: | 10.1002/eahr.500228 |
| Depositing User: | Edward Dove |
| Date Deposited: | 20 May 2025 11:49 |
| Journal or Publication Title: | Ethics and Human Research |
| Publisher: | Wiley |
| Refereed: | Yes |
| Related URLs: | |
| URI: | https://mural.maynoothuniversity.ie/id/eprint/19830 |
| Use Licence: | This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here |
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