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    Current challenges in neuropsychological assessment when screening and diagnosing dementia within populations of low literacy, such as the Travelling Community of Ireland.


    Higgins, Dawn (2024) Current challenges in neuropsychological assessment when screening and diagnosing dementia within populations of low literacy, such as the Travelling Community of Ireland. PhD thesis, National University of Ireland Maynooth.

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    2027-Dawn Higgins Thesis.pdf
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    Abstract

    Introduction: Current cognitive assessments for dementia are subject to biases due to large load of verbal content and knowledge which confound the assessment when administered to individuals who do not follow usual educational pathways, or when administered to an individual of a culture different from the normative data in which these assessments were developed. Thus, any individual with a cultural or literacy background different from the average Irish may perform below expectations, which may be misinterpreted as cognitive decline and lead to a false positive dementia diagnosis. Aim: The central aim of the proposed research is to determine the most appropriate approach to accurate screening and diagnosing of dementias within the Travelling Community of Ireland. Methods: A review of some commonly used assessments was also conducted to determine which cognitive impairments are assessed by each test. A scoping review of previous research examining assessments used with populations of low literacy was conducted to determine which assessments are validated for use with such populations, and their suitability. Three focus groups comprising members of the Travelling Community were conducted to determine their understanding of dementia, diagnosis-related stigma, and three focus groups comprising clinicians were conducted to determine how assessments with this population are currently conducted. Participants: 14 clinicians and 20 Travellers took part in the focus groups. Results: Limitations to current assessments were identified by the scoping review. Several key themes were identified through the focus groups, namely (1) an urgent update of assessments was identified in both sets of focus groups, (2) education around dementia was identified in Traveller focus groups (3) discussion between clinicians and Travellers in order to alleviate misconceptions on both sides (4) education for clinicians around Traveller culture, and interpersonal relations with this Community (5) changes to assessment procedures in order to be more inclusive of Travellers. Conclusion: Current dementia assessment pathways are not suitable for use by the Travelling Community. The fear of institutions experienced by the Community results in a disconnect between the services available and their uptake resulting in dementia being underdiagnosed, poorly treated, and commonly misunderstood by Travellers. Education for medical staff into Traveller culture is needed in order to begin to bridge this gap, and education on the symptoms, progression and services available should be provided to Traveller advocacy groups for dissemination within the Community. The use of dementia champions within the Traveller Community may serve to explain and demystify dementia for the Community. The assessment process itself should also be reviewed as a matter of urgency, to ensure inclusivity for those individuals who are unable to complete the current assessments due to literacy or cultural issues.
    Item Type: Thesis (PhD)
    Keywords: neuropsychological assessment; diagnosing dementia; low literacy; Travelling Community; Ireland;
    Academic Unit: Faculty of Science and Engineering > Psychology
    Item ID: 20087
    Depositing User: IR eTheses
    Date Deposited: 26 Jun 2025 09:34
    URI: https://mural.maynoothuniversity.ie/id/eprint/20087
    Use Licence: This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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