Higgins, Dawn (2024) Current challenges in neuropsychological assessment when screening and diagnosing dementia within populations of low literacy, such as the Travelling Community of Ireland. PhD thesis, National University of Ireland Maynooth.
![2027-Dawn Higgins Thesis.pdf [thumbnail of 2027-Dawn Higgins Thesis.pdf]](https://mural.maynoothuniversity.ie/style/images/fileicons/text.png)
2027-Dawn Higgins Thesis.pdf
Restricted to Repository staff only until 1 January 2027.
Available under License Creative Commons Attribution Non-commercial Share Alike.
Download (2MB)
Abstract
Introduction: Current cognitive assessments for dementia are subject to biases due
to large load of verbal content and knowledge which confound the assessment when
administered to individuals who do not follow usual educational pathways, or when
administered to an individual of a culture different from the normative data in which
these assessments were developed. Thus, any individual with a cultural or literacy
background different from the average Irish may perform below expectations, which
may be misinterpreted as cognitive decline and lead to a false positive dementia
diagnosis.
Aim: The central aim of the proposed research is to determine the most appropriate
approach to accurate screening and diagnosing of dementias within the Travelling
Community of Ireland.
Methods: A review of some commonly used assessments was also conducted to
determine which cognitive impairments are assessed by each test. A scoping review
of previous research examining assessments used with populations of low literacy
was conducted to determine which assessments are validated for use with such
populations, and their suitability. Three focus groups comprising members of the
Travelling Community were conducted to determine their understanding of
dementia, diagnosis-related stigma, and three focus groups comprising clinicians
were conducted to determine how assessments with this population are currently
conducted.
Participants: 14 clinicians and 20 Travellers took part in the focus groups.
Results: Limitations to current assessments were identified by the scoping review.
Several key themes were identified through the focus groups, namely (1) an urgent
update of assessments was identified in both sets of focus groups, (2) education around dementia was identified in Traveller focus groups (3) discussion between
clinicians and Travellers in order to alleviate misconceptions on both sides (4)
education for clinicians around Traveller culture, and interpersonal relations with
this Community (5) changes to assessment procedures in order to be more inclusive
of Travellers.
Conclusion: Current dementia assessment pathways are not suitable for use by the
Travelling Community. The fear of institutions experienced by the Community
results in a disconnect between the services available and their uptake resulting in
dementia being underdiagnosed, poorly treated, and commonly misunderstood by
Travellers. Education for medical staff into Traveller culture is needed in order to
begin to bridge this gap, and education on the symptoms, progression and services
available should be provided to Traveller advocacy groups for dissemination within
the Community. The use of dementia champions within the Traveller Community
may serve to explain and demystify dementia for the Community. The assessment
process itself should also be reviewed as a matter of urgency, to ensure inclusivity
for those individuals who are unable to complete the current assessments due to
literacy or cultural issues.
Item Type: | Thesis (PhD) |
---|---|
Keywords: | neuropsychological assessment; diagnosing dementia; low literacy; Travelling Community; Ireland; |
Academic Unit: | Faculty of Science and Engineering > Psychology |
Item ID: | 20087 |
Depositing User: | IR eTheses |
Date Deposited: | 26 Jun 2025 09:34 |
URI: | https://mural.maynoothuniversity.ie/id/eprint/20087 |
Use Licence: | This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here |
Repository Staff Only (login required)
Downloads
Downloads per month over past year