Gialama, Maria (2023) The “Mind Your Next Dance” (MYND) Programme: a mixed methods study of a mindfulness-based dance movement psychotherapy for people with mild to moderate dementia and their caregivers. Vol. 1. PhD thesis, National University of Ireland Maynooth.
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Abstract
Background: The majority of people with dementia (PwD) experience behavioural and psychological
disturbances (BPDD) such as depression, agitation, apathy and aggression, which can be associated
with disease progression, hospitalisation, institutionalisation and increased morbidity, mortality, and
healthcare utilisation. Considering the substantial evidence on the risks, side effects, and long-term
inefficacy of psychotropic drugs for the treatment of BPDD, numerous guidelines recommend non�pharmacological strategies as the preferred first line treatment approach. The aim of this study was to
develop a multi-component non-pharmacological intervention (NPI) using mindfulness and dance
movement (psycho)therapy for PwD and their caregivers (“Mind Your Next Dance” [MYND] Programme)
and to prepare a protocol to assess its feasibility, acceptability and effectiveness.
Method: Informed by the UK’s Medical Research Council’s guidelines for developing complex
interventions, an exploratory multiphase sequential mixed methods design was employed. Three studies
were conducted, whereby qualitative data from in-depth individual interviews (n= 31) and a focus group
(n=10) informed a (mainly) quantitative Delphi survey (n=30). A critical realist, inductively driven approach
to reflexive thematic analysis was used to analyze the qualitative data.
Results: Analysis of the qualitative interview data gave rise to four overarching themes: (1) key
therapeutic factors and intervention characteristics contributing to therapeutic change, (2) barriers to and
enablers of the adoption of NPIs, (3) lessons learned from practice and (4) a framework for understanding
integrative and holistic approaches to compassionate and person-centred dementia treatment and care.
Four overarching themes were identified in the focus group analysis: (1) the reconciliation of
pharmacological with non-pharmacological approaches for integrated dementia care, (2) the
(de)medicalization of psychological therapies, (3) therapeutic factors that can improve outcomes and
facilitate therapeutic change and (4) rebuilding more equal and accessible dementia care. Delphi findings
complemented and validated the findings from the interviews and focus group and facilitated formal
consensus on a range of statements regarding (1) the key determinants of effective therapeutic
processes, (2) factors that can improve implementation and (3) factors enabling effective holistic,
integrated and continuing dementia care.
Conclusions: The MYND programme can benefit PwD and their caregivers when implemented by
competent professionals, within a person-centred and human rights-based approach and when integrated
in health care plans/community mental health services. Psychotherapeutic and psychosocial
interventions can address complex and diverse dementia-related needs, including social and peer
support, assisting PwD and caregivers to maintain social engagement and improve BPDD, as well as
enhancing relationships, well-being and quality of life. These interventions should be personalised and
co-developed by PwD, caregivers and diverse cadres of clinicians and (psycho)therapists. They should
also be adaptable to different contexts (clinical and community settings, in-person, online, blended) and
changing capacities, embracing individuality, diversity and multiculturalism. They should comprise an
integral part of post diagnostic dementia support and should be widely available and communicated and easily accessible. It is crucial for such interventions to be offered at low/no cost, sustained over time, and
supported by policies, clinical practice guidelines and governmental funding.
Item Type: | Thesis (PhD) |
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Keywords: | The “Mind Your Next Dance”; (MYND); mixed methods study; mindfulness-based dance movement; psychotherapy; mild to moderate dementia; caregivers; |
Academic Unit: | Faculty of Science and Engineering > Psychology |
Item ID: | 20093 |
Depositing User: | IR eTheses |
Date Deposited: | 26 Jun 2025 10:43 |
URI: | https://mural.maynoothuniversity.ie/id/eprint/20093 |
Use Licence: | This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here |
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