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    Dying to talk: Unsettling assumptions toward research with patients at the end of life


    McLoughlin, Kathleen (2010) Dying to talk: Unsettling assumptions toward research with patients at the end of life. Palliative and Supportive Care, 8 (3). pp. 371-375. ISSN 1478-9515

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    Abstract

    Following in the steps of researchers such as Saunders (1958), Kubler Ross (1970b) and, more recently, Donnelly and Donnelly (2009), I wanted to learn by listening to the patient. I wanted to hear the patient’s story to enable me to understand how they felt about their transition to palliative care services and how they saw their future. While similar in my intention to these visionary researchers, I was unquestionably different. With a background in mental health research and quality and risk, my interest in research of this nature was questioned by some ethics committees and viewed with an air of suspicion by some health professionals working in palliative care. As a non-practitioner, was it ethical for health professionals who seek to protect their patients, to allow me to ask the dying what it is like to die?
    Item Type: Article
    Keywords: Dying to talk; Unsettling assumptions; research with patients; end of life;
    Academic Unit: Faculty of Science and Engineering > Psychology
    Item ID: 20629
    Identification Number: 10.1017/S1478951510000179
    Depositing User: IR Editor
    Date Deposited: 30 Sep 2025 09:13
    Journal or Publication Title: Palliative and Supportive Care
    Publisher: Cambridge University Press
    Refereed: Yes
    Related URLs:
    URI: https://mural.maynoothuniversity.ie/id/eprint/20629
    Use Licence: This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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