McLoughlin, Kathleen (2010) Dying to talk: Unsettling assumptions toward research with patients at the end of life. Palliative and Supportive Care, 8 (3). pp. 371-375. ISSN 1478-9515
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Abstract
Following in the steps of researchers such as Saunders (1958), Kubler Ross (1970b) and, more recently,
Donnelly and Donnelly (2009), I wanted to learn by
listening to the patient. I wanted to hear the patient’s
story to enable me to understand how they felt about
their transition to palliative care services and how
they saw their future. While similar in my intention
to these visionary researchers, I was unquestionably
different. With a background in mental health research and quality and risk, my interest in research
of this nature was questioned by some ethics committees and viewed with an air of suspicion by some
health professionals working in palliative care. As a
non-practitioner, was it ethical for health professionals who seek to protect their patients, to allow
me to ask the dying what it is like to die?
Item Type: | Article |
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Keywords: | Dying to talk; Unsettling assumptions; research with patients; end of life; |
Academic Unit: | Faculty of Science and Engineering > Psychology |
Item ID: | 20629 |
Identification Number: | 10.1017/S1478951510000179 |
Depositing User: | IR Editor |
Date Deposited: | 30 Sep 2025 09:13 |
Journal or Publication Title: | Palliative and Supportive Care |
Publisher: | Cambridge University Press |
Refereed: | Yes |
Related URLs: | |
URI: | https://mural.maynoothuniversity.ie/id/eprint/20629 |
Use Licence: | This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here |
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