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    Igniting intersectoral collaboration in chronic disease management: a participatory action research study on epilepsy care in Ireland

    Varley, Jarlath and Kiersey, Rachel and Power, Robert and Byrne, John-Paul and Doherty, Colin and Saris, Jamie and Lambert, Veronica and Fitzsimons, Mary (2020) Igniting intersectoral collaboration in chronic disease management: a participatory action research study on epilepsy care in Ireland. Journal of Interprofessional Care, 34 (4). pp. 500-508. ISSN 1356-1820

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    Models of care developed to improve the lives of people with chronic diseases highlight integrated care as essential to meeting their needs and achieving person (patient)-centered care (PCC). Nevertheless, barriers to collaborative practice and siloed work environments persist. To set in motion some groundwork for intersectoral collaboration this study brought two expert groups of epilepsy care practitioners together to engage in participatory action research (PAR). The expert practitioner groups were hospital-based epilepsy specialist nurses (ESNs) and community-based resource officers (CROs). The PAR highlighted, that while the participants share a mutual interest in caring for people with epilepsy, underdeveloped CRO-ESN relationships, arising from unconscious bias and ambiguity can result in missed opportunities for optimal care coordination with consequent potential for unnecessary replication and waste of finite resources. However, through dialogue and critical self-reflection, a growing emotional connection between the disciplines evolved over the course of the PAR. This allowed for buds of collaboration to develop with CROs and ESNs working together to tackle some of the key barriers to their collaboration.

    Item Type: Article
    Keywords: Action research; interprofessional collaboration; health and social care; patient-centered practice; participatory action research; collaboration;
    Academic Unit: Assisting Living & Learning,ALL institute
    Faculty of Social Sciences > Anthropology
    Item ID: 16073
    Identification Number:
    Depositing User: Andrew Jamie Saris
    Date Deposited: 13 Jun 2022 14:39
    Journal or Publication Title: Journal of Interprofessional Care
    Refereed: Yes
    Use Licence: This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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