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Dove, Edward and Chen, Jiahong (2020) To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices? Journal of Law, Medicine & Ethics, 48 (S1). pp. 187-195. ISSN 1073-1105
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Abstract
In this article, we consider the possible application of the European General Data Protection Regulation (GDPR) to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for lex specialis that would provide greater clarity and certainty regarding the processing of health data by for research purposes, including these non-traditional researchers.
| Item Type: | Article |
|---|---|
| Keywords: | Biomedical Research; Citizen Science; Computers, Handheld; Confidentiality; European Union; Humans; Personally Identifiable Information; Telemedicine; GDPR; General Data Protection Regulation; Citizen; Scientist-Led Health Research; Mobile Devices; |
| Academic Unit: | Assisting Living & Learning,ALL institute Faculty of Social Sciences > Law |
| Item ID: | 19903 |
| Identification Number: | 10.1177/1073110520917046 |
| Depositing User: | Edward Dove |
| Date Deposited: | 27 May 2025 13:41 |
| Journal or Publication Title: | Journal of Law, Medicine & Ethics |
| Publisher: | Cambridge University Press |
| Refereed: | Yes |
| Related URLs: | |
| URI: | https://mural.maynoothuniversity.ie/id/eprint/19903 |
| Use Licence: | This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here |
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