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    Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework


    Dove, Edward (2015) Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework. Journal of Law, Medicine & Ethics, 43 (4). pp. 675-689. ISSN 1073-1105

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    Abstract

    Spurred by a confluence of factors, most notably the decreasing cost of high-throughput technologies and advances in information technologies, a number of population research initiatives have emerged in recent years. These include large-scale, internationally collaborative genomic projects (Table 1) and biobanks (Table 2), the latter of which can be defined as an organized collection of human biological material and associated data stored for one or more research purposes. Biobanks are a key emerging research infrastructure, and those established as prospective research resources comprising biospecimens and data from many participants are viewed as particularly promising drivers of biomedical progress. Such biobanks, particularly those publicly funded and set up to promote the public interest, have expanded across the globe in recent years.
    Item Type: Article
    Keywords: Biological Specimen Banks; Biomedical Research; Confidentiality; Databases, Factual; Humans; Information Dissemination; International Cooperation;
    Academic Unit: Assisting Living & Learning,ALL institute
    Faculty of Social Sciences > Law
    Item ID: 19961
    Identification Number: 10.1111/jlme.12311
    Depositing User: Edward Dove
    Date Deposited: 09 Jun 2025 11:33
    Journal or Publication Title: Journal of Law, Medicine & Ethics
    Publisher: Cambridge University Press
    Refereed: Yes
    Related URLs:
    URI: https://mural.maynoothuniversity.ie/id/eprint/19961
    Use Licence: This item is available under a Creative Commons Attribution Non Commercial Share Alike Licence (CC BY-NC-SA). Details of this licence are available here

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